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UK registered charity supporting patients & families touched by vascular Ehlers-Danlos syndrome. Vascular EDS is a rare genetic disorder and is life limiting.
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REDS4VEDS DAY is a global campaign which takes place on the third Friday of May each year. The aim of the campaign is to help raise the profile of Vascular Ehlers-Danlos syndrome (vascular EDS), a rare genetic disorder. Wear red and let the whole world know about vascular EDS.
The Ehlers-Danlos Support UK is the only UK charity to support anybody touched by the Ehlers-Danlos syndromes
UNSED association nationale des Syndromes d'Ehlers-Danlos. Agréee par le Ministère de la Santé.
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The Hypermobility Syndromes Association - supporting people with hypermobility, Ehlers-Danlos syndromes, Marfan syndrome, sticker syndrome and more.
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Annabelleschallenge.org domain is owned by 1&1 IONOS SE and its registration expires in 3 years and 5 months .
Срок действия :
3 года, 5 месяцев назад
Истекает Ноябрь 08, 2020Регистратор и статус
| Имя регистратора |
1&1 IONOS SE |
| Регистратор домена |
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