Annabelleschallenge Альтернативы & Конкуренты
UK registered charity supporting patients & families touched by vascular Ehlers-Danlos syndrome. Vascular EDS is a rare genetic disorder and is life limiting.
Альтернативы и конкуренты annabelleschallenge.org по содержанию, трафику и структуре
EDS Today – Advocates.
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REDS4VEDS DAY is a global campaign which takes place on the third Friday of May each year. The aim of the campaign is to help raise the profile of Vascular Ehlers-Danlos syndrome (vascular EDS), a rare genetic disorder. Wear red and let the whole world know about vascular EDS.
The Ehlers-Danlos Support UK is the only UK charity to support anybody touched by the Ehlers-Danlos syndromes
UNSED association nationale des Syndromes d'Ehlers-Danlos. Agréee par le Ministère de la Santé.
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Information.
The Hypermobility Syndromes Association - supporting people with hypermobility, Ehlers-Danlos syndromes, Marfan syndrome, sticker syndrome and more.
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Oh TWIST-And maybe that's why you're tired too. Join me on a journey of discovery about one of the most poorly recognized and unbelievably tangled health webs you can find.
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Association pour les Syndrome d'Ehlers Danlos et les HSD - Association Sed1+.
Hamonet.free.fr is ranked number 10M in the world.
Site de l'association du Groupe d’Etudes et de Recherches du Syndrome d’Ehlers-Danlos (GERSED), structure coordonnant les efforts d‘amélioration du diagnostic, du traitement et de la recherche sur le syndrome d’Ehlers-Danlos. Le SED est une pathologie de l'ensemble du tissu conjonctif ,d'origine génétique, avec altération des collagènes. Ce n’est plus une « maladie rare » mais un syndrome fréquent, méconnu, ignoré, voire refusé, dont le diagnostic est très tardif. Le diagnostic repose sur la seule clinique, ce qui, est parfois difficile à admettre à notre époque d'inflation de l'imagerie et de la biologie ( qui sont normales dans ce cas). Nous vous proposerons ici les outils d’aide au diagnostic du syndrome ainsi que leur mode d’emploi. Il existe pourtant des traitements symptomatiques spécifiques efficaces quand le diagnostic est posé.
SED in France - Association pour les Syndromes d'Ehlers-Danlos et les Troubles du Spectre de l'Hypermobilité - SED in FRANCE.
GESED - Groupe d'Entraide des Syndromes d'Ehlers-Danlos
DOG.
A resource for patients. What you want to know about your eyes and forgot to ask.
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Ehlers-Danlos research and support
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Curated News and Information on Chronic Pain and Ehlers-Danlos Syndrome
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Groupe d'étude et de recherche du Syndrome d'Ehlers-Danlos
Arc-en-Sed est une association d'information autour des syndromes d'Ehlers-Danlos, dédiée au soutien des patients et de leurs soignants. Venez vous informer !
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HOME .
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