Ehlers-danlos 대안 & 경쟁사
Home | The Ehlers Danlos Society : The Ehlers Danlos Society.
대안 및 경쟁자 ehlers-danlos.com 콘텐츠, 트래픽 및 구조 측면에서
The Ehlers-Danlos Support UK is the only UK charity to support anybody touched by the Ehlers-Danlos syndromes
The Hypermobility Syndromes Association - supporting people with hypermobility, Ehlers-Danlos syndromes, Marfan syndrome, sticker syndrome and more.
The Marfan Foundation | Know the signs. Fight for victory.
Oh TWIST-And maybe that's why you're tired too. Join me on a journey of discovery about one of the most poorly recognized and unbelievably tangled health webs you can find.
What We Do (Current Home) - EDS Wellness, Inc.
Our purpose is to provide information about what Loeys-Dietz Syndrome is and give hope to those impacted by the condition. We hope that you will find medical information and personal support to assist you and your family on your journey with Loeys-Dietz Syndrome. Learn more about our foundation and how you can help provide life-saving research and support to families around that world.
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Invisibleillnessforum.com is ranked number 10M in the world and links to network IP address 198.57.149.247.
Curated News and Information on Chronic Pain and Ehlers-Danlos Syndrome
Strengthflexibilityhealtheds.com is ranked number 10M in the world and links to network IP address 192.254.185.210.
Ehlers-Danlos research and support
Multi-Perspective Palm Reading: About Hands & how to make a Hand-Diagnosis
The Marfan Trust has three objectives: To fund medical research projects that aim to aid the diagnosis and treatment of Marfan syndrome patients. To provide educational literature on Marfan syndrome and all its aspects to the medical profession and the general public, thus raising awareness of the condition. To provide peer-to-peer support and medical guidance to those affected and their families. Contact us by email: marfantrust@sgul.ac.uk or by telephone 020 8725 1189 more information and leaflets about Marfan syndrome can be found on our website.
Aortic Dissection, Heart & Cardiovascular Health with Marfan Syndrome.
Welcome to Loeys-Dietz Syndrome Foundation Canada | Loeys-Dietz Syndrome Foundation Canada.
GADA is focusing on: 1. Promoting the creation of multidisciplinary aortic (MDA) clinics, centres of excellence for the treatment of all genetic aortic disorders across Canada. 2. Expediting the development of diagnostic criteria and treatment protocols for each and every genetic aortic disorder. In order to achieve this objective, in 2013 GADA organized an intensive three-day inaugural meeting that took place in Italy which resulted in the creation of the Montalcino Aortic Consortium (MAC). Gene mutations have been identified to increase the risk of aortic aneurysms and dissections such as, mutations in the following genes: TGFBR1 & TGFBR2 – Loeys-Dietz syndrome FBN1 – Marfan syndrome, MYLK, ACTA2, SKI, TGFB2, SLC2A10, TGFB3 , MAT2A, SMAD(2/3/4), MFAP5, MYH11, PRKG1, FOXE3, LOX
The VEDS Movement mission is to save lives and improve the quality of life of individuals with Vascular Ehlers-Danlos Syndrome (VEDS). By pursuing the most innovative research, educating the medical community, general public and affected individuals, and providing support to patients, families, and caregivers, we can charge forward and improve the outcomes for those living with VEDS.
Learn About Your Pain | A U.S. Pain Foundation Initiative.
A website run by parents of children with Down’s syndrome for anyone who needs us! Whether you already have a baby or child with Down’s syndrome, you are pregnant and want advice on screening and tests or have just received a positive diagnosis following an amnio or CVS, we are here to support you!
Sickbubble.com is ranked number 10M in the world.
Marfan-association.org.uk is ranked number 10M in the world.
MAMC J Med Sci, Official publication of Maulana Azad Medical College,India
Find everything you need to know about Marfan syndrome including pictures of those affected by this genetic disease
Moringaleafextract.com is ranked number 10M in the world.
Melanie Anne Phillips.
Information on how to build up immune health safely and naturally providing scientific research as backup.
Decoding the Language of the Hand + the diagnostic practice of 'hand reading' a.k.a. scientific hand analysis, predictive palmistry & medical palm reading.
UK registered charity supporting patients & families touched by vascular Ehlers-Danlos syndrome. Vascular EDS is a rare genetic disorder and is life limiting.
CPDx at the University of Washington offers clinical genetic testing and research collaboration using exome sequencing technology.
Home | JohnRitterFoundation.
The John Ritter Research Program in Aortic and Vascular Diseases at the UT-Houston Medical School is working to prevent premature deaths due to thoracic aortic disease by improving diagnosis, treatment, and promote aortic health.
This is a 100% nonprofit page for the Global Aortic Disease Awareness Day September 19
Cincyhearteducationseries.org is ranked number 10M in the world.